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Starting chemotherapy - information for patients | UHL NHS Trust
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hello and welcome to the new case talk for patients starting chemotherapy you should be attending this talk if you have been told by a consultant that you'll be starting a course of chemotherapy you may have received a pack in the post which has given you information regarding your appointment for your new case talk your treatment and also when you'll be seeing the doctor you will have also received lots of information leaflets on how to stay well during treatment so what to expect from today's new case talk this talk will provide information and guidance for friends and family and yourself on how to stay well during treatment we will also give you specific information about your treatment and including any other questions that you may have after watching this presentation you will get a quote from one of our nurses and on the time slot specified in your pack this appointment is for 15 minutes and this is where the nurse will speak to you about any concerns you may still have after watching this presentation the nurse will also speak to you about possible side effects for your individual treatment this talk is also to help answer any questions which you may still have regarding starting chemotherapy feel free to make some notes and jot down any questions which you may have that is not clear in these slides or you may have that do not get answered during this presentation so what is chemotherapy chemotherapy is a drug use for the treatment of cancer chemotherapy can either destroy cancer cells or chemotherapy can slow down or reduce the multiplication of cancer cells chemotherapy is administered when surgery and radiotherapy cannot reach certain areas of the cancer now unfortunately in this process chemotherapy doesn't only kill cancer cells but damages healthy cells as well such as gut mouth skin nails and hair but unlike cancer cells healthy cells can recover and this is what makes patients feel unwell when having chemotherapy different chemotherapies work in different ways so not all cancers behave in the same way therefore every single patient is given chemotherapy which is individualized for their self for their diagnosis so everybody's chemotherapy will vary depending on what the consultant will think will work best for them sometimes they can this can mean a single agent so one chemotherapy sometimes it can be multiple chemotherapies or sometimes it can also mean a combination of chemotherapy and immunotherapy but when the nurse gives you a call she will go through what chemotherapies you'll be having how long it will take and how how many treatments will be involved in the process each one varies in time so we tend to have some treatments which are eight hour long and some treatments that come anything up to five minutes long but this will be clarified by the end of your new case talk the doctor's team provide patients with information on the individual treatment if you haven't received this you can receive information on your individual treatment on the MacMillan website during the 15-minute consultation the nurse will go nurse will go through and discuss your treatment in specific and this is where you will have a chance to raise any concerns you may have you may have received a purple card in the post which has appointments on there on the card you will have an appointment to see the doctor an appointment to start treatment and also some contact numbers which may be handy for you whilst on treatment your appointment time will depend on the chemotherapy you are having sometimes sometimes you may be called in the day before your appointment to change your appointment time in case there is a delay with your treatment we do try to accommodate longer treatments in the morning and shorter treatments in the afternoon so we have enough time in the day to accommodate all of our patients but we do understand some patients may have individual circumstances where they cannot attend that appointment and if you have certain appointments that you do need instead these speak to our nurse in charge or Ward sister to see what they can do for your circumstance when attending this week please hand in your purple appointment card at the desk this will alert the nurses of your arrival and admin will also book in their appointment for your next doctor visit and your next chemotherapy visit unfortunately on the chemotherapy Suite they can be delays to appointment times due to numerous unprecedented events we do apologize if you are waiting to come in for your chemotherapy but the nurses are aware that you are here we do try to keep you updated and let you know what is happening and what the time delays are but if you have been there for a little while and nobody has come out to speak to you and you are concerned feel free to find one of our team to explain and look into what has happened contact numbers if you have any questions regarding appointment General queries appointment times something you're not too sure about please ring the chemotherapy Suite on 0116-258-6107 if you have any general queries regarding your treatment which is not urgent please call your consultant's medical secretary which you'll be given contact details for all queries regarding your normal regular medication long-term conditions or anything that your GP is supporting you for already carry on keeping in close contact with the GP to do that still we do have an emergency line number dedicated for patients who experience problems related to chemotherapy which will discuss a little bit further in the next few slides you will also receive information details for specialist nurses dietitians support nurses which will also help your journey whilst on chemotherapy on the chemotherapy Suite unfortunately it is a very small sweep and due to health and safety we do only allow staff and patients in the treatment area relatives and friends are more than welcome to bring in family members for the treatment but they will have to wait in the lobby area um until they do finish treatment sometimes in exceptional circumstances I understand patients may need a friend or family member with them please speak to the nurse doing a new case talk if this is the case for when you come in for treatment if you are arriving by ambulance please alert one of our nurses as soon as you get here to ensure we can arrange a return ambulance for you promptly eating and drinking on the day of treatment please take your normal medications as prescribed by your GP or doctor on the day of your treatment unless told otherwise please do not fast prior to treatment all patients should have something to eat or drink before they do come in there is always tea coffee sandwiches jelly biscuits yogurts available on the street for patients and will be offered but if you feel you would like to bring in a pack up or bringing your own food that is allowed also blood tested and prior to every single chemotherapy session now if you have not had chemotherapy before and you are starting treatment your bid results can be anything up to two weeks old but all consequent treatment after your first one your Bloods have to be within five days of starting treatment what blood test too is they check that you are well enough to have your chemotherapy and your blood cells have recovered enough from having your lust treatment you will receive a platform every cycle ready for your next treatment these Bloods can be no older than five days for example if you're having treatment on a Friday then the earliest duplets can be done is a Monday if you're still unsure on what date have your Bloods please speak to one of our nursing team you can have your blood test taken at your GP surgery and normally if you let them know that every two weeks or every three weeks on a Tuesday you need a blood test they tend to be quite accommodating we also have our walk-in centers uh walking through botany clinics on all three Hospital sites but if you are still struggling to get Bloods done properly speak to one of our nursing team to see what else we can arrange for yourselves delay in obtaining blood results May in turn delay treatment what to expect once a nurse has been allocated to start your treatment and your treatment has been checked you will then be called into one of our chemotherapy chairs at this point the nurse will check your details your information and check you in if you need any pre-medication for your chemotherapy this will then be given to you and your treatment will be set up at this point the nurse will notify you of the process how long your visit will be what it will involve and also give you any medications you need to go home with if you have any questions regarding any of these things please raise it with your nurse at this point if you are unwelly it's really important that you do seek medical help before coming in for your chemotherapy treatment whether that is speaking to your oncologist ringing the emergency line or ringing your GP or informing the suite so they can direct you please ensure you let somebody know and not wait till your treatment date if you are feeling unwell how is chemotherapy given so chemotherapy can be given through a vein in your hand so what happens is you come into the chemotherapy sweep the nurse will will put a small cannula into your hand and it normally goes in the back of your hand and this will allow the nurses to infuse an intravenous chemotherapy through your body but I must raise it it's really important that if you find any discomfort burning stinging or notes any redness or swelling notify one of our nurses immediately as on some occasions this can be caused by chemotherapy some patients have a central line inserted into the upper part of the arm which involves a procedure prior to the chemotherapy if this is the case when the nurse calls you for your individual talk they will let you know chemotherapy can also be given as tablets which is given from specialized trained pharmacists who will dispense it to you and explain to you what it involves and how to take the medication the emergency line so all patients that are having chemotherapy have a dedicated line to discuss any side effects on if they're feeling unwell whilst on treatment so if you are feeling unwell it is related to chemotherapy it is important that you bring the number which has been sent to you in the post on your red alert card the number is 0808-178-2212 it is available 24 hours seven days a week if you are unable to get through leave a message and somebody will call you back within 30 minutes side effects this is one of the most biggest worries and concerns for most of the patients thought in treatment side effects will vary depending on the type of chemotherapy you will be receiving and also how each individual reactional treatment although you are made aware of all the common side effects it is highly unlikely for you to experience all the side effects most patients experience some or none of the side effects but rarely all of them but we have to make sure we alert patients of everything to look out for so they know what to do if they get any ensure you are informing the oncology team of any side effects or problems you are occurring when starting your treatment infection this is another common side effect from starting chemotherapy one of the healthy cells that you need to fight infections in your body are like cells and white cells are reduced whilst on chemotherapy so this can increase the risk of an infection if you do get an infection and is caused by a low number of white cells in your body it is known as neutropenia infection for a patient on chemotherapy can be life charging this is why it's very important if you do feel unwell you know what to look out for and you know who to call and signs and symptoms of an infection we advise all patients to have a thermometer at home before starting treatment having a temperature is one of the most common signs of having an infection this is why we ask all patients that if you're feeling well for the first check to be carried out is your temperature this doesn't need to be done daily or routinely but only if you're feeling unwell so if you have a temperature is above 37.5 you may it may be an indicator of infection you must ring us up and let us know but also bear in mind that not all patients will get a raise temperature so if you are feeling unwell and you're in doubt give us a call and get advice please do not take any medication until you have spoken to one of our medical team first as taking medications such as paracetamol May mask the fact that you have a temperature this is a small list of things that we ask patients to look out for so if you have a sore throat sore mouth cough a call-like symptoms diarrhea vomiting a rash open area Rudder swollen chills sweats frequent urination and burning um these are all signs that it may be a side effect to the treatment also any other common side effects which are raised on the chemo information sheet keeper those in mind what we do say to all of our patients is you know your body you know how you feel on a normal day and you know when you're feeling a bit rough so if you are feeling a bit rough and you feel like it is related to chemotherapy please make sure you ring the emergency line and get advice most chemotherapies can cause nausea and vomiting not all chemotherapies so on some chemotherapies you are given provisional anti-sickness medication it is really important that you take medication that has given you for provisional basis as it is always easy to combat side effects if you start taking the medication prior to getting symptoms it is a lot harder to manage once you are starting to get symptoms so if you are feeling sick you have taken the medication as prescribed by your doctors and nurses and you are still feeling sick it is lasting for more than two hours and you're struggling to eat or drink please ring the emergency line and get advice if you have diarrhea it is important to rest and drink plenty of fluids to stay hydrated if you have done so and if you have taken any anti-laxative medication prescribed to you by your doctor and you're still experiencing diarrhea which is what to be loose happening overnight or lasting for more than two hours please again call the emergency line to get advice sore mouth this is another common side effect from treatment if you do develop a small sore mouth this includes mouth sores redness back patches on your mouth or tongue or trouble a pain to swallow please contact us and let us know there is an information leaflet in your pack which tells you how to look after your mouth and how to stay well whilst on treatment we do say to all of our patients avoid any dental work during treatment if you do need any dental work try to have that done before you start your chemotherapy if you cannot do so and you are having problem with your teeth please inform somebody so we can see what's the best port of action once you start your treatment we also advise all our patients use a soft toothbrush to avoid damaging the gums along with a gentle mouthwash which is alcohol-free to help keep the mouth clean if you do wear dentures please make sure the Dentures you were wearing are good fitting dentures they are not tight and when you are cleaning your gum area make sure that you've got no ulcers or red or areas on your skin if you notice that you have any bruising bleeding or rushes please ensure you let us know so please contact us if you develop any bruising that you cannot explain if you have any abnormal bleeding including blood in your urinal stools no heavy nose bleeds if you notice any rashes on your body please let us know we also say to all of our patients moisturize your skin get your skin in good condition to help avoid any skin irritation your skin is a lot more sensitive so we also advise patients to use electric razors rather than normal razor blades hair loss not all chemotherapy drugs cause hair loss when the nurse gives you a call they will inform you whether the treatment you are having will make you lose your hair if you do lose your hair whilst on chemotherapy this is not permanent and your hair will grow back okay so when you do lose your hair on treatment it's not only on your head but all over your body so this can be eyelash eyebrows legs arms but like I said hair loss on chemotherapy is not permanent they have got the option for Wig fittings available so if you are going to lose your hair and you would like a wig fitting it is really important you let one of our nurses know so we can refer you over to our MacMillan Center to arrange this we do advise all our patients try getting a wig fitting referral completed before you start your chemotherapy so you have a wig in place before you start losing your hair patients on chemotherapy do get discounted rates on their wigs down in McMillan Center so if you are not sure I do say to all our patients go have a visit to the McMillan Center base downstairs and they can give you more information regarding the weeks that they Supply we also offer pull caps on some treatments to help prevent hair loss what is a cold cut a cold cup is a jelly-like app and what it aims to do is once you put the cap on your head it freezes your hair follicles and reduces the amount of hair that is lost this depends on individual patients please speak to your nurse whether this is something you would be interested in we do advise all patients on chemotherapy to use a lot more delicate products on their hair such as mild shampoo and avoid any heated products on your hair or perm in your hair fatigue is a common side effects whilst on chemotherapy if you do experience extreme footage please keep your consultant notified of this it is very common to feel tired whilst on treatment so it's really important that you listen to your body you take it easy then you do not push yourself too far gentle exercise and short walks can help but if you still feel quite tired throughout all your treatment please speak to one of our team avoid activities that will can cause you any injuries we say whilst on treatment still carry on going to the shops theaters Cinemas going out where you normally go but just be an extra bit more precautious so going when it's less busy using hand wash and wearing a face mask if you have friends and family visiting asking them are you well are you unwell if you're not well please come back when you're feeling better as you are more prone to getting what they're getting what do you do if somebody in your house is unwell the only thing you can do is keep a closer eye on yourself the first signing symptom that you're getting what they get in or you may have a temperature you must let us know straight away if you have pets see if you can get somebody else to clean up after them if not ensure that you wear gloves and wash your hands with warm soapy water afterwards fertility some chemotherapies can cause infertility not all chemotherapies so if you do plan to father a child or get pregnant in the future you must speak to your consultant before you start treatment regarding your fertility options we also say to all of our patients there is chemotherapy pressure in all bodily fluids so please avoid becoming pregnant or fathering a child whilst on treatment therefore we do advise all of our patients to use standard line protection whilst on chemotherapy eating and drinking chemotherapy causes up a buildup of toxins in your body the more fluid you drink the more toxins you will be flushing out so keep hydrated keep drinking fluids this does not include tea and coffee wash your hands before eating or drinking these are simple things we should be doing on a daily basis but please make sure you keep an extra eye whilst you are on chemotherapy sometimes we tend to eat food that's gone off by a day we advise not to and just getting rid of it it does say eat a well-balanced diet but I say to my patients you may have a reduced appetite you may have a change in taste so eating little and often of whatever you can manage is good avoid anything raw and unpasteurized and ensure you're reheating your food properly if you are still struggling to eat or drink please speak to our dietitian team or our nurses so we can help support you through your chemo Journey we do advise all of our patients to have a free vaccination and covert vaccination before starting chemotherapy if you haven't had any of your vaccinations this is not to worry please speak to one of our team and they will advise you when is the best time to have your vaccination whilst on treatment drinking alcohol there are small number of treatments where we advise patients to have no alcohol but most treatments we say yes to small amounts of alcohol your nurse will discuss this with you further on your individual consultation we do advise any staff on chemotherapy not to go away abroad until they've spoken to one of our doctors first so if you are planning to go away anywhere speak to your tea before you book anything if it is sunny your skin is a lot more sensitive please wear Factor 50 cream cover up and stain the shade as much as possible if you do go away anywhere in the UK take your chemo card with you so if you are unwell or need medical assistance they are aware of your diagnosis treatment and the center looking after you we do have the McMillan information center which is based downstairs in the Osborne building they provide a lot of information and support to people with cancer and their families they have information and support regarding Finance benefit clinics they also have plenty of information and support groups to help patients and friends and family and drop in or give them a call to arrange an appointment to see what advice or support they could offer you just to go over today's presentation you will be followed up by a call from one of our nurses on your allegated date they will go through your treatment in specific and help answer any other questions that you may have please feel free to make notes of any questions or concerns that you may have to discuss this with your nurse just to remind you we have two telephone numbers the chemo suite number which is outlined and the emergency line number which is for patients when they are feeling unwell so if you are feeling unwell and is related to chemotherapy please ring the emergency line I hope this has given you enough information on what will happen when you do start your treatment if you still have concerns feel free to raise this with your nurse or doctor thank you for listening and thank you for watching our video and if you have any questions we will hope to speak to you soon thank you
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