surgeries for too long their time is up [Applause]
this movement is no longer confined to
the streets the big fight is in state
legislatures the California State Senate
passed a resolution in 2018 saying
surgeries that aren't medically
necessary should be delayed until the
child is old enough to consent but that
resolution was non-binding an activists
won enforcement makers in five states
have introduced bills to ban certain
procedures until the child was old
enough to choose for themselves all were
asking colleagues is that the person
who's being operated on be able to weigh
in it's that simple
not all former patients support a ban
though some say the surgeries they had
as infants save them from physical pain
and emotional distress
I know Senate bill 201 would have
created additional hardships for me and
my family I know a bill that blocks
access to health care assumes every
person is the same and discredits mental
health would have made my life worse and
the doctors who perform these surgeries
have mobilized in opposition the
societies for pediatric neurology is
lobbying against these proposals calling
them an extraordinary overreach vice
News spoke with dr. Beth Drew's wekki
who serves on the SPU's intersex task
force pediatric neurologists are neither
for nor against surgery we are for the
individualized care using a
multidisciplinary team to treat the
patient and the family what would you
say to a parent who looks at their
intersection genitals and says this
doesn't look normal I just want it to
look normal I really try and enforce
with everybody patient family that
everybody has their own normal and maybe
help them understand the umbrella of
intersex a little bit more closely in
almost all health care situations
parents have the best interest of the
child at hand when they are making these
decisions so for example you think of
parents fully within their rights to
have a child's healthy functional
clitoris we're
if they're uncomfortable with how it
looks I think that that decision is made
as a team together about what is going
to be in the best interest of the child
based on the specific diagnosis for that child
child
but sometimes the decision is based on a
social idea of what that clitoris should
look like right there are situations
that support doing that operation early
on and we do have data that supports
that and therefore when a family chooses
that option we feel comfortable
supporting it our understanding of the
clitoral Anatomy of intersex diagnosis
overall has dramatically changed as well
has our approach to children who are
born intersex but the main point that
the activists are making is I didn't
choose this for myself historically
there was not very much transparency at
all in children who are born intersex
our goal now is to really talk to the
families make sure that they understand
the decisions that they're making and
furthermore we also disclose this
information to the children along the
way with age-appropriate information
legislation that prohibits healthcare
options for all patients or generalizes
medical care for everyone poses a
disservice and possible harm for some
children who may benefit from the
surgery other urologists are now
breaking ranks and speaking out in favor
of legislation dr. Barbara Bach is an
adult urologist at Mount Sinai Hospital
in New York who ultimately should have
the choice for these surgeries the child
or the parents of the child to the
extent to which it is safe the decision
should go to the child whenever he/she
they are bold enough thoughtful enough
empowered enough to make that choice so
do you think decisions about some
surgeries should just be taken away from
the parents entirely I reluctantly say
yes yes
I do why I fear that out of fear or out
of a desire for their children to
conform to their own ideal vision
parents are with the best intentions
seriously restricting their children's
autonomy in ways that are irreversible
as a doctor are you okay with the
government saying you cannot perform
this procedure on a patient you're
getting at do I support the bill in
California as a doctor I would say that
I reluctantly support the bill I really
don't think that anyone really wants
government legislation to be inserted
into the doctor-patient relationship the
trouble is that since the 1990s
urologists have consistently failed to
address the very valid concerns raised
by activist patients and and their
families we have collectively failed to
permit a voice to those who despite our
very best intentions have been hurt is
the chief and Cardinal tenets of
medicine is force to no harm we have
evidence of harm we need to step away
from that and see if maybe we can do
better we're pushing for a shift in the
way that intersex people are treated
towards a first do no harm approach
surgeries can still happen but the
person can grow up and make a decision
and have autonomy over their body and
that's huge as a human right bodily
autonomy and integrity is a human right
and so we want everybody to have that ability
ability [Music]
[Music] you
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